Natalia Hidalgo Szumiel (2 Sep 2008 - 2 Oct 2019)

For Charitable
Donations To

Oaklands School, 750 Ferry Rd, Edinburgh EH4 4PQ

Funeral Service

Location
--Mortonhall Crematorium Main Chapel---- Howdenhall Road Edinburgh EH16 6TX
Date
14th Oct 2019
Time
1pm
Funeral Director
Scotmid Funerals, Liberton

Cremation Details

Location
Mortonhall Crematorium Main ChapelHowdenhall RoadEdinburghEH16 6TX
Date
14th Oct 2019
Time
1pm

In loving memory of Natalia Hidalgo Szumiel who sadly passed away on 2nd October 2019.

Natalia was born at RIE on September the 2nd, 2008 with severe and widespread brain damage. Natalia was transferred to the Neonatal Unit when she met me for the first time. I was mesmerized by her sweetness. She was beautiful and fragile. I was stunned by love and devotion.

Three days after birth, it was thought that Natalia’s death was imminent, and Mum and I were informed and went through the emotional trauma of this. Care for Natalia was reoriented to provide for maximum comfort, and we did the best we could. Cuddles, kisses, care, walk indoor and outdoors, bubble baths, baby massages,….. Every day was a Spa day for Natalia!!! “ This is nice!!” - she must have thought!! - She loved it so much that she decided to hang around for a bit longer,….. despite all the difficulties. A fighter was born!

On the 19th of September 2008, Natalia was discharged “to go home but still with serious difficulties, high requirements for supervision and care” (Neonatal Discharge Summary) where she remains cared for till the age of 8.

The complexity of her medical needs was being revealed as she grew older. From birth, Natalia was unable to coordinate swallowing which made her prone to chest infections and could not eat by mouth. Enteral feeding was via nasogastric tube and at older age gastrostomy (surgery) fed directly into her tummy. She had a very high muscle tone, source of pain and also epilepsy which were reasonably well controlled.

Unlike her vision, Natalia’s sense of hearing and touch were highly developed, which enabled her to be aware of her surroundings and others to interact and communicate with her. Natalia loved social interaction and always smiled when she heard a familiar voice.

Natalia also had quadriplegia and needed to care for day and night adequately. She had all the equipment she needed to enable mobility and integration. A wheelchair to go into the community, a standing frame to develop bone strength and other benefits, a hoist track to help lifting, bath support systems to enjoy hydrotherapy, even a car at the age of 3 to facilitate transport to holiday clubs, or collect her from school and drive her from/to respite care.

The school was one of the main pillars that hugely contributed to Natalia’s happiness.
Natalia loved going to school!! She was very fortunate to attend Oaklands School and to be nurtured by their team of specialized teachers, physiotherapists, nurses, etc.. Oaklands helped Natalia to make sense of the surrounding environment, grown her confidence and explore new things, like the smell of tomatoes or achieving turning her head in the direction of a person talking. Natalia had many friends at school and all staff members described her as a happy girl, full of smiles and a delight to work with. She will be greatly missed at School.

In 2016, Natalia moved from the family environment into NHS managed nursing home as a full-time resident to provide for her increased care, particularly at night. The dedicated staff at Sundach and then Calareidh took Natalia under their wings and nurtured her in a family-like setting with the tender love and care that any father could ever hope for and all children deserve.

Since January 2019 Natalia was diagnosed with a critical condition, and her care was reorganized to provide for her maximum comfort. On September 2nd a huge surprise party was arranged at Calereidh for Natalia’s 11th birthday. Over 50 people came, most dressed as a princess (Except dad :) ), to celebrate with Natalia and she was over the moon!! There were tons of presents but Natalia gave all the healing gift of her biggest smile ever!!! What a beautiful memory!!!

It is thanks to the hard work, help, support, care and love given to Natalia by family & loved ones, the staff at RIE, Sick Kids Hospital Edinburgh, Oaklands School, Sunndach and Calereidh, that provide Natalia with the opportunity she deserved to be happy.

In return, Natalia’s strength and resilience have provided unique positive effects and make individual contributions to many other families and family life. It has provided opportunities from personal growth and influence many different people to get a more balanced understanding and appreciation of what people are about — accepting diversity and people's behaviors. Enhance learning to open the heart and be more loving, calm, caring, warm, independent and less selfish.

As a father, I have the experience of pride and joy at a deeper level. It has strengthened the relationship with my younger son and brought us closer. My son has become stronger and more resilient, and now he has the memory of her sister to follow as a role model.
All professional teams involved have gained a positive experience, and they earn pride and satisfaction from having made Natalia’s life (and many others) happier.

Furthermore, these are transferrable knowledge. Our experiences can now be shared and transmitted to children and promote diversity and equality, to parents affected by disabilities to help them cope better throughout the struggle, to fundraise and encourage projects that will enhance the life experiences of kids at a disadvantage.

For those that wish to make a donation in memory of Natalia, please make it to Natalia’s school, Oaklands – see donations section of Obituary for contact details – The donated funds will be allocated for the construction of an outdoors sensory environment in where children with disabilities will be able to experience the diverse weathers within a safe environment protected from the elements.

Donations for this project can be made by bank transfer directly to Oakland’s School or to the family - details bellow:

OAKLANDS

Royal Bank of Scotland
239 St John’s Road, EH12 7xA
Short Code: 831847
Account: 00645489
IBAN: GB25RBOS83184700645489
BIC: RBOSGB2L

FAMILY

Bank of Scotland
Short Code: 804661
Account: 01068400


Many thanks to All,

Roberto Martin Hidalgo

Roberto Hidalgo posted a picture

First time in The Snow.

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Siesta time!!!

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Meeting New Friends

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Cuddling Time!!! at Neonatal Unit RIE

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Natalia 11th Birthday Party at Calareidh”: There was Natty, in full ivory silk dress, with pearls, hair beautifully styled, nailed painted, jewelled up to the nines” - Morna Phillips, Head Teacher of Oaklands School - memories shared.

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Natalia ❤️ Unicorns

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Hola Natalia!!!! - Natalia & Dad

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture

Natalia’s 11th Birthday Party: Hola Abuela Carmen!!!!

Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Roberto Hidalgo posted a picture
Report abuse
Comment on this photo
Ryan Preston lit a candle
Zosia Janeczko lit a candle
Nertila Pushaj lit a candle
Klaudja Oshafi posted a picture

Natalia, your life made such a significant difference in the lives of so many people and definitely changed mine. ❤️ You taught me lessons I wouldn’t have learned by any other way. You taught me about unicorns. All unicorns are different, sparkly, beautiful, strong and proud. Like you. You taught me acceptance and that nothing is too hard or challenging to put you down. You taught me how to slow down and enjoy the little things, which are also the most important. Such as feeling the sun in your skin or listening to the voice of your loved ones. You were spreading the broadest charming smiles so generously. You loved unconditionally and you were loved unconditionally. You made the most out of this adventurous life. What an example! I can’t describe in words how much I miss you already. These feelings can only be felt. But I promise that I will remember your inner strength, courage and kind heart and let them guide me for the rest of my life. Thank you our little girl. “You can’t blend in when you were born to stand out” -Wonder

Report abuse
Comment on this photo
Melina Oshafi posted a picture

Natalia is probably the strongest girl that i have ever met in my life. She had an incredible smile that every time i saw it made me smile too. I was so lucky that I had the chance to meet her. Spending time with Natalia was amazing and a big experience for me and I have only happy memories that I will never forget. She was unique, sweet and amazing in her own ways. I will always remember her with a smile on her face,her beautiful hairstyles, her colorful nails. I knew her for a sort period but that was enough for me to love her. She will be missed by every one!❤️🦄

Report abuse
Comment on this photo
Maria Oshafi posted a picture

Natalia captured my heart since the first day I met her. I will always remember her great, beautiful smile and our interactions. We might have know each other for a short period of time but she managed to occupy a big space in my heart and teach me a tone. I admire her strength, her dad’s dedication and the affection and hard work from all the people surrounding her. She will be greatly missed ❤️

Report abuse
Comment on this photo
Kujtim Oshafi lit a candle
Rachel Elam lit a candle
Rachel Elam wrote

Natalia it was a privilege to work with you on and off over your time at Oaklands. I especially remember taking you for walks in the school grounds and the smile on your face when we found a sunny spot.

Report abuse
Comment on this message
Powered by Funeral Guide Contact Funeral Guide